It's the joint pain this time
Hello- my name is Jen, I have been lucky in my almost 30 years of having Crohn's. I've only had 3 flare ups, the third I am now experiencing. I can honestly say that stress triggers my flare ups. I have had Crohn's since I was in the 4th grade, right after my parents divorce. . However, at that time I was misdiagnosed with having Ulcertive Colitis. I was very sick for a year. I was on tons of meds: Prednisone, Azsulfadine, and Imuran. They almost removed my colon, but I went into remission.
My second flare up was Freahman year of college. It's very stressful going off to school. That was when the Dr diagnosed me with Crohn's. My symptoms were not that bad this time, and after a month or 2 on Asacol and Clindex, I went into remission.
A few months ago my 3rd flare started. I'm going through the most stressful time of my life. My father is terminally ill and I am his care taker. He lives 2 hours away, so for the last 8 months I've been back and forth on a weekly basis. My Grandma died, then I learned my partner and fiancé of 11 years was having an affair. My flare ups begin with blood and mucus in the stool and the urge to go to the bathroom constantly. However, I have developed debilitating arthritis. When I wake up in the morning I feel like the Tin Man from Oz. I'm so stiff that it sometimes takes 2 hours to get out of bed. And, I'm constantly fatigued. The Dr has started me on Apiso. I have an uncle with Crohn's and Ankylosing Spondylitis; he has the genetic marker. I am waiting on my test to come in to see if I also have the genetic marker. My Gastrointestinal Dr has referred me to a Rheumatologist, but I cannot get in until October!
This arthritis/fatigue is worse than the actual Crohn's symptoms. My Gastro Dr is suggesting that I need to go on a biologic like Remicade or Humira. I am terrified of these meds and want to exhaust all other options. Thoughts? Suggestions? Ideas?