Crohns Disease Story
I just today discovered your web site and will try to read much of it in the future. I don't understnad much about computers so I have not done the RSS registration thing. It is all too confusing to me. I will just visit the site regularily. At 67 years old I am just glad I could learn what I have so I could go on-line a little bit .
I have been on Humira for 2 years now for my Crohn's which was diagnosed about 4 years ago--at my then age of 62. I am 67 now. I can no longer afford the Humira as the foundations now say they are quite short of money so I can't gat any help.
My Dr. said he would switch me to Remicade as he "thinks" it is covered under Medicare. Do you know if it is? Do you think switching to Remicade would be ok ? I was considering just stopping the meds totally and trying to live with the disease. I get flare ups occassionaly but mange to handle it at home by going to bed for 24 hours or so while the pain is at it's worst. My Dr. says I get a bowel obstruction that causes this and I quit eating and wait for it to pass. A couple Vicodin helps me thru the pains. Then I am ok again for a few months. Seems like the Humira isn't doing much to keep it in remission anyway.
I suppose the Dr. will say it would be worse without the Humira but I must tell him I just can't afford it, period.
He should understand. I have to pay nearly $700 for each injection and I take one every 2 weeks. My wife has diabetes and so much expense there also with her Actos and 3 other meds. We are broke and do not want to lose our small home and car over this thing. I will just have to be tough I guess.
Anyway, thank you for this wonderful web site. I will read it totally in the days and weeks ahead. God bless you for trying to help others as you are doing. There needs to be more nice and wonderful people like you in the world.