Crohns Disease Story.
My name is Brian Miller.
I would like to talk to you about something I found that helps.
My story is a very long one. Too long to post in this forum.
I have been dealing with Crohn’s Disease for over 30 years. The pain and discomfort caused by this hideous disease destroyed my life.
I have gone through two bowel resections and numerous emergency room and hospital visits over the years.
During the first twenty years of this disease, Prednisone and Sulfasalazine were the main treatment. Later Antibiotics (Ciprofloxacin or Metronidazole), Corticosteroids, 6-Mercaptopurine (6-MP), Methotrexate, and Cyclosporine when I ended up in emergency rooms. Which happened more than I can remember. None of these worked as the Prednisone did. I eventually started receiving Remicade treatments that helped with the fistulas for a while. This was temporary and I had to go back every 6 weeks.
In 2007, the disease flared-up and consumed me. I was found in bed un-responsive and rush to the hospital in an ambulance. I spent three days on life support and stayed in the hospital for approximately 35 days. During this time, they were not able to get control of the disease and I experienced my second bowel resection. I never recovered.
After the surgery, I got worse. The pain returned, the fistulas’ got worse, and I developed a new symptom of rashes all over my skin. The pain stayed at a level 10 and was now 24 hours. I slept in 30 minute increments because my bowel frequency was unparalleled to anything I had experience in all the years of harboring this disease.
I literally was preparing for my death. I sent all my possessions to my children and arranged for my body to be taken care of. I at this time lost all hope and wanted nothing more than to die.
In May of 2009, my roommate approached me and told me
she met a man whose grandchild had Crohn’s disease. He had created this liquid that he felt could help me. I responded that I did not want help and really, as if I need another miracle in my life as I rolled my proverbial eyes.
Through the years, I had tried everything. I made my own food. I ate different diets. I tried everything from Probiotic products to vitamins to miracle cures. At every corner through the years was the ultimate miracle that resulted in yet another disappointment.
With her insistence, I went to see this man and when I walked into his dark and dingy office I felt there was no way I wanted anything to do with this. To my disappointment, there was a voice deep down pushing me forward. I accepted the plastic gallon jug he handed me and carried it home. He instructed me to drink 2 ounces a day 3 times a day. The taste was unbelievably horrid at first.
My attitude was that I had nothing to lose. Therefore, I drank this stuff three times a day. On the third day, the pain disappeared and I was able to sleep through most of the night. The frequency went down and I was able to sleep through the night within a week of starting the formula.
Today I am not totally symptom free and there are some resemblances of the disease present at times. However, I lost my ileum in the first bowel resection and bile can be an issue if I do not watch my diet.
For the most part, I live a productive, happy symptom free life. In my heart, I know the disease is gone. I feel that after 30 plus years of pain and everything else that comes with Crohn’s disease there is a body and cellular memory. As each day goes by, I laugh more than the day before.